Cleft lip and palate clinic

by Michele

Today we had our appointment at the U of M cleft lip and palate clinic.  It was a long day.  Quinn was awake from 1:20-4 am.  I got up at 5:15 to take a shower and we were on our way at 5:50.  We got up there in plenty of time to get our paperwork turned in and loaded into the computer.  We talked to the head chair and then we started the parade of doctors.  Usually they have 5-6 families and the doctors rotate through all of the different rooms.  To make sure they don’t miss a patient, they have the check list outside of each patients door.

Today there was suppose to be 4 patients but one did not show up.  We were 2 of the patients so I think the doctors had an easy go of it.  We heard a lot of comments, wait which one is which again ( I dressed them differently so that there would be no confusion).  I think they started writing the color of shirt on the papers before the doctors came into the room because they got better as we moved on through the day.  Over all, I think it went pretty smoothly.  We would have about 3-4 doctors come pouring into the room looking at  the girls and then have some downtime until the next wave of doctors came pouring through.  There were no other patients to take turns with so they just piled into our room stepping on the toys the girls had scattered throughout the room.  This is what our room looked like.  Now just imagine it with 3-4 doctors crammed into the corner with one girl on my legs and the other on Ted’s.  It was full.

The girls had their hearing checked.  We thought they might not need ear tubes because they don’t seem to have any ear pain but we found out that the girls have a lot of clear fluid in their ear.  Jenna got to play with the flash light.  It was the only time she was not crying when she was getting checked out by the various doctors.

True to Quinn’s nature, she took every poke and pry with a good attitude.  Granted she was sitting on my lap for most of them but even the few she was on her own, she did great.  She is one tough cookie because last week when we were getting her blood drawn, she whimpered once and then sat and watched as they filled a few tubes.  Just so you know, it took 3 of us to hold down Jenna to get enough blood out of her.   I thought we were going to break her somehow.

After we talked to all of the doctors they came up with a plan of attack.  In the next few weeks we will be going in to have surgery done on both girls on the same day.  It is going to get a bit messy with sleep scheduled and when they can last eat before their turn.  We are going to have about 4 hours with a very over tired girl who is not allowed to eat breakfast or lunch while the other is having their surgeries done.  They are going to close the palate, put in ear tubes and do a lip adhesion all on the first day.  Apparently they have had better luck with scaring if they do a lip adhesion first.  They basically cut open both sides of the missing lip (4 cuts per kid) and stretch the skin and muscles to close.  A few months later they will actually close it all the way off and form a lip.  Doesn’t that sound fun.  We were told that recover is pretty hard and we will have two to deal with.  We should find out our surgery date in a few days.  We have to wait for the receptionist to call us back and set up the time.

We were done by 12:40.  I think the girls were excited to be on their way home.  They were all tuckered out.  Here is hoping for a good night sleep tonight.


About tochinaandbackagain

I am a stay at home mom to two very active boys and soon we will bring home two Chinese twin girls with cleft lip and palate issues. I spend my day trying to be the best parent and wife I can be with God leading the way.
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One Response to Cleft lip and palate clinic

  1. Dan says:

    Thanks for sharing your story and I’m glad to know that the girls will get the cleft lip & palate surgery that they need.

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